| Cyclic Vomiting Syndrome Association (CVSA) |
| PO Box 270341, Milwaukee, WI 53227 Phone: 414-342-7880 Email: cvsaonline@gmail.com www.cvsaonline.org |
| International Foundation for Gastrointestinal Disorders (IFFGD) |
| PO Box 170864, Milwaukee, WI 53217 Phone: 414-964-1799 For children: www.aboutKidsGI.org For adults: www.iffgd.org |
| National Organization for Rare Disorders (NORD) |
| 55 Kenosia Ave, Danbury, CT 06810 Phone: 203-744-0100 Fax: 203-263-9938 www.rarediseases.org |
| United Mitochondrial Disease Foundation (UMDF) |
| 8085 Saltsburg Rd, Suite 201, Pittsburgh, PA 15239 Phone: 412-793-8077 Fax: 412-793-6477 Email: info@umdf.org www.umdf.org |
