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Major developmental issues and their effect on diabetes in children and adolescents

Major developmental issues and their effect on diabetes in children and adolescents
Developmental stage
(approximate ages)
Normal developmental tasks Type 1 diabetes management priorities Family issues in type 1 diabetes management
Infancy
(0 to 12 months)
Developing a trusting relationship/"bonding" with primary caregiver(s)

Preventing and treating hypoglycemia

Avoiding extreme fluctuations in blood glucose levels

Coping with stress

Sharing the "burden of care" to avoid parent burnout
Toddler
(13 to 36 months)
Developing a sense of mastery and autonomy

Preventing and treating hypoglycemia

Avoiding extreme fluctuations in blood glucose levels due to irregular food intake

Establishing a schedule

Managing the "picky eater"

Setting limits and coping with the toddler's lack of cooperation with regimen

Sharing the burden of care
Preschooler and early elementary school-age
(3 to 7 years)
Developing initiative in activities and confidence in self

Preventing and treating hypoglycemia

Coping with unpredictable appetite and activity

Positively reinforcing cooperation with regimen

Trusting other caregivers with diabetes management

Reassuring the child that diabetes is no one's fault

Educating other caregivers about diabetes management
Older elementary school-age
(8 to 11 years)

Developing skills in athletic, cognitive, artistic, and social areas

Consolidating self-esteem with respect to the peer group

Making diabetes regimen flexible to allow for participation in school or peer activities

Child learning short- and long-term benefits of optimal control

Maintaining parental involvement in insulin and blood glucose monitoring tasks, while allowing for independent self-care for "special occasions"

Continuing to educate school and other caregivers
Early adolescence
(12 to 15 years)

Managing body changes

Developing a strong sense of self-identity

Managing increased insulin requirements during puberty

Diabetes management and blood glucose control becoming more difficult

Weight and body image concerns

Renegotiating parents' and the teen's roles in diabetes management to be acceptable to both

Learning coping skills to enhance ability to self-manage

Preventing and intervening with diabetes-related family conflict

Monitoring for signs of depression, eating disorders, and risky behaviors
Later adolescence
(16 to 19 years)
Establishing a sense of identity after high school (decisions about location, social issues, work, and education)

Discussion of transition to a new diabetes team (discussion may begin in earlier adolescent years)

Integrating diabetes into new lifestyle

Supporting the transition to independence

Learning coping skills to enhance ability to self-manage

Preventing and intervening with diabetes-related family conflict

Monitoring for signs of depression, eating disorders, and risky behaviors
Reprinted from: Silverstein J, Klingensmith G, Copeland K. Care of Children and Adolescents with Type 1 Diabetes. Diabetes Care 2005; 28:186. Copyright © 2005 The American Diabetes Association. (Reaffirmed in Chiang JL, et al. Type 1 diabetes through the life span: A position statement of the American Diabetes Association. Diabetes Care 2014; 37:2034.)
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