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General guidance on fracture prevention for patients with Duchenne muscular dystrophy and their families

General guidance on fracture prevention for patients with Duchenne muscular dystrophy and their families
Assessment and education
  • Minimize fall risks in all environments, including consideration of walking surface, terrain, and obstacles
  • Provide training for patients and families on wheelchair safety; raise awareness that falls out of wheelchair are a common cause of injury
  • Provide training for families in safe lifting and transfers to and from wheelchair and various surfaces in all environments
Common considerations or possible modifications
Safety of home environment
  • Remove obstacles such as rugs, toys, cords, and clutter
Avoidance of falls from wheelchair or mobility device
  • Use seatbelt at all times
  • Use anti-tippers on wheelchairs
Safety on uneven or slippery surfaces
  • Take special care when outdoors because of uneven surfaces
  • Wear pool shoes for protection against falls when walking on slippery surfaces around water
  • Use non-slip treads on ankle-foot orthoses at night to decrease fall risk when walking to and from bathroom
Safe transfer in and out of wheelchair
  • Consider adaptive equipment and patient lift systems early for use in all settings to provide safe support and minimize risk of falls or injury during transfers, toileting, and bathing or showering
Potential home modifications
  • Non-slip mats in shower or bathtub
  • Grab bars for shower or bathtub
  • Bath seat or other adaptive equipment for bathing
  • Non-slip treads for bare-wood steps
  • Handrails on both sides of stairways
Reproduced from: Birnkrant DJ, Bushby K, Bann CM, et al. Diagnosis and management of Duchenne muscular dystrophy, part 2: respiratory, cardiac, bone health, and orthopaedic management. Lancet Neurol 2018. Table used with the permission of Elsevier Inc. All rights reserved.
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