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Patient education: Complex regional pain syndrome (The Basics)

Patient education: Complex regional pain syndrome (The Basics)

What is complex regional pain syndrome? — Complex regional pain syndrome (CRPS) is a condition that causes pain, swelling, and other symptoms. It usually happens in just one part of the body, such as an arm or leg.

Both adults and children can get CRPS. In adults, it often starts after a bone fracture, an injury (such as a sprain), surgery, or a stroke. Doctors are not sure how or why it starts. People who have CRPS have worse pain than doctors would expect from the injury, surgery, or other medical problem. In some cases, especially in children, CRPS can start without any injury or surgery happening first.

What are the symptoms of complex regional pain syndrome? — In adults, CRPS usually affects the arms. In children, CRPS most often affects the legs.

Symptoms of CRPS can include:

Pain – The pain can be burning, tingling, throbbing, or aching. It can also be severe.

Being sensitive to touch or cold, or not feeling touch or pain normally.

Swelling in the body part with CRPS

Trouble moving the body part with CRPS due to pain, swelling, or stiffness

Tremor (shaking) or muscle spasm in the body part with CRPS

Skin changes – These might include changes in skin thickness, temperature, or color, or sweating more or less than usual.

Changes in the way the hair and nails grow

In most cases, the first symptoms of CRPS include pain, redness, and swelling of the affected body part. Usually the part with CRPS feels warm at first, but might later change from warm to cold. In other people, it feels cold at first.

Is there a test for complex regional pain syndrome? — No. There is no one test that is used to find CRPS.

A doctor will do an exam and ask questions. They can usually tell if a person has CRPS from the symptoms, medical history, and exam.

If a doctor is not sure if a person has CRPS, they might order imaging tests such as a bone scan, X-ray, or MRI. These tests create pictures of the inside of the body. They can show changes to the bones, joints, or skin that might be caused by CRPS.

Doctors can also do tests that measure skin temperature, sweating, and nerve sensitivity. These tests are not usually needed. The doctor might do them if they need extra information.

For children with CRPS, doctors might do blood tests and imaging tests to make sure a different condition is not causing the symptoms. Once they knows a child has CRPS, other tests are not usually needed.

How is complex regional pain syndrome treated? — Treatment for CRPS is different for each person. Doctors can try different treatments to see what works best.

For adults, treatments for CRPS include:

Learning about CRPS – For example, it is important to know that even though CRPS hurts, it does not damage the body part. Joining a support group can help a person with CRPS deal with symptoms.

Talking with a counselor – This can help reduce stress. Stress at work or home can be part of CRPS or make it worse.

Physical therapy to learn exercises and stretches, and keep the body part with CRPS working.

Taking medicines to relieve pain – These can be prescription or over-the-counter medicines, depending on what the doctor or nurse thinks might work best.

If these treatments do not help, people with severe CRPS should see a doctor who specializes in treating pain. These specialists might try other treatments, such as:

Injections (shots) of numbing or pain-relieving medicines

Pain-relieving medicine given in the spine

Devices to help stop nerve signals of pain

The main treatments for children with CRPS include:

Physical and occupational therapy – This involves learning exercises, movements, and ways of doing everyday tasks.

Counseling to reduce stress and anxiety – Working with a counselor is also important to treat mental or emotional problems that could be part of CRPS.

Can complex regional pain syndrome be prevented? — Sometimes. Taking vitamin C after breaking a bone or having surgery might help prevent CRPS.

In adults who have a bone fracture, injury, or stroke, keeping a body part moving can help prevent CRPS. For example, if someone with a stroke is partly paralyzed, a therapist can gently move the paralyzed parts of their body. This can be done even if the person cannot get out of bed.

More on this topic

Patient education: Chronic pain (The Basics)
Patient education: Common wrist injuries (The Basics)

Patient education: Fibromyalgia (Beyond the Basics)

This topic retrieved from UpToDate on: Jan 01, 2023.
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