| Pain and symptom management |
| The child's pain is treated |
| Other troubling symptoms are treated |
| Clinical staff respond quickly to concerns about the child's symptoms |
| Communication |
| Clinical staff provide information in a way that can easily be understood |
| Clinical staff prepare caregivers/family members for what might happen to the child |
| Clinical staff inquire about and respect caregivers'/family members' wishes and decisions |
| Clinical staff create an atmosphere in which caregivers/family members feel comfortable asking questions about their child |
| Support of decisions to withdraw life-sustaining treatments |
| Caregivers/family members have opportunities to discuss options about the child's care with the healthcare team |
| Conflicts between caregivers/family members and clinical staff about the best way to care for the child are avoided |
| Privacy |
| Caregivers/family are given privacy with the child near the end of the child's life |
| Physical and instrumental needs of family |
| Caregivers/family members are able to easily meet their basic physical needs (accessible bathroom, showers, affordable meals, places to stay, parking, etc) |
| Emotional needs/support of family |
| Clinical staff demonstrate that they cared about the child as an individual |
| Clinical staff support the caregivers/family emotionally |
| Caregivers/family are given opportunities to be near their child |
| Fulfilling the parental role |
| Clinical staff help caregivers/family find ways to touch, hold, and/or connect with the child |
| Spirituality and religious/cultural issues |
| Hospital clergy and chaplains are available |
| Staff inquires about and respects the family's spiritual and/or religious needs |
| Continuity/coordination of care |
| Nurses and doctors pass information about the child onto the next shift or rotation |
| Grief and bereavement |
| Clinical staff help caregivers/family create memories (such as handprints, lockets of hair, photographs) of the child |
| Upon the child's death, the caregivers/family are allowed to stay with the child for as long as they wish |
