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Facilitating advance care planning discussion

Facilitating advance care planning discussion
Step Purpose Question/comment
Permission Invites the patient to discuss their current condition and desires regarding future medical care "Would you like to talk about what might happen in the future, and how we could make sure your wishes are followed?"
Preference Allows patient to determine how involved they are in planning, and whether they want others involved "Would you like to talk about this by yourself, or are there others you would like to join us?"
Establish the baseline To determine what the patient's understanding is regarding their medical situation at the present time

"What is your understanding about your medical situation?"

"What have your doctors told you?"
Provide information To provide clear information about the choices that may be faced in the future, individualized to the patient's own current medical condition For a patient with recurrent cancer, for example: "Because your cancer came back, it is not curable. You will be living with this disease for the rest of your life, like a chronic disease."
Introduce dilemmas at hand To determine if the patient has thought about the medical care they would like to receive in the future "Has someone close to you had to face end-of-life decisions, like deciding about withdrawing a ventilator or going on hospice? What would you have wanted in that situation?"
Explore values and beliefs To help the patient define what it means to "live well"

"What is most important to you in life?"

"What are your main worries about your situation?"

"When you think about your future, what do you hope for?"
Elicit advance care planning preferences To guide the patient to state specific preferences about advance care planning, including cardiopulmonary resuscitation, life-prolonging treatment, and inpatient hospitalization "If you were to stop breathing, would you want to be on a machine that breathes for you?" Note: If the patient is interested in a trial of life support, the clinician should ask them to specify the parameters of the trial (how long? criteria to decide when to stop treatment).
Identify a surrogate decision-maker To specifically name someone who will carry out their wishes in the case they are unable to in the future "If you became unable to tell your clinicians what kind of care they should provide you, who would you want to make medical decisions for you?" Note: If the patient names multiple persons, aim to establish a primary surrogate.
Educate about the role of a surrogate To ensure understanding on how the surrogate decision-maker would function in the future "If you became unable to participate in discussions about your care, your surrogate would be called in to tell us what should be done."
Encourage dissemination among family To ensure that the advance care planning decisions of the patient are known to their loved ones, and specifically, to the surrogate(s) "It would be important to let your family know of your wishes and desires for the future. This includes letting everyone know who you have chosen as your surrogate decision-maker."
Document Encourages the patient to complete advance care planning forms, which will increase the chances their wishes are followed in the future "These are important decisions that will impact your care in the future. We should make sure to get them in writing."
Review Review of these plans on a regular basis ensures that advance care planning decisions accurately reflect their decisions "Would you like to revisit your advance care plans? I just want to make sure they still reflect your wishes today, compared with when we did it the last time."
Based on information provided by Karen Detering, MD and Maria J Silveira, MD, MA, MPH.
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