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Strategies for approaching common issues in palliative and end-of-life care that may be culturally influenced: Discussing palliative care with patients and families

Strategies for approaching common issues in palliative and end-of-life care that may be culturally influenced: Discussing palliative care with patients and families
Strategies Suggested phrases and tools
  • Use straightforward language when describing palliative care, ideally using language tested and approved by the public.[1,2]
  • Avoid conflating palliative care with end-of-life care or hospice.[1,2]
  • The term "serious illness" was specifically preferred over terms like "advanced illness" and "life-limiting illness."[2] Recommended phrasing emphasizes living, as in "living with serious illness" (instead of "having" or "dying from").
  • Recommended patient-centered definition:[1,2]
    • Palliative care is specialized medical care for people with serious illness. It focuses on providing patients with relief from the symptoms, pain, and stress of a serious illness. The goal is to improve quality of life for both the patient and the family.
    • Palliative care is provided by a team of doctors, nurses, and other specialists who work with a patient's other doctors to provide an extra layer of support. Palliative care is appropriate at any age and at any stage in a serious illness, and can be provided together with curative treatment.
References:
  1. Clinical Practice Guidelines for Quality Palliative Care, 4th edition. Published by National Coalition for Hospice and Palliative Care, 2018. Available at: www.nationalcoalitionhpc.org/ncp (Accessed on May 15, 2019).
  2. 2011 Public Opinion Research on Palliative Care: A Report Based on Research by Public Opinion Strategies. Report commissioned by the Center to Advance Palliative Care and supported by the American Cancer Society Cancer Action Network. Available at: https://media.capc.org/filer_public/18/ab/18ab708c-f835-4380-921d-fbf729702e36/2011-public-opinion-research-on-palliative-care.pdf (Accessed on May 15, 2019).
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